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	<title>Sleep Apnea Blog &#187; pacing</title>
	<atom:link href="http://sleepapneazone.org/blog/tag/pacing/feed" rel="self" type="application/rss+xml" />
	<link>http://sleepapneazone.org/blog</link>
	<description>Great Information on Sleep Apnea</description>
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		<title>Home Mechanical Ventilation CH 01-Introduction</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-01-introduction</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-01-introduction#comments</comments>
		<pubDate>Thu, 03 Dec 2009 08:02:17 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-01-introduction</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/yIvZIVmVPSs/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:4:24</b></p>
<p><span id="more-225"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/yIvZIVmVPSs" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
			<wfw:commentRss>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-01-introduction/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Diaphragm Pacing CH 06-Final words</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-06-final-words</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-06-final-words#comments</comments>
		<pubDate>Sun, 29 Nov 2009 15:57:05 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-06-final-words</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/5Md7zcGyVRc/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:3:31</b></p>
<p><span id="more-210"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/5Md7zcGyVRc" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
			<wfw:commentRss>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-06-final-words/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Diaphragm Pacing CH 04-CCHS Story</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-04-cchs-story</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-04-cchs-story#comments</comments>
		<pubDate>Thu, 19 Nov 2009 23:35:05 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-04-cchs-story</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/kcfTr8NDorc/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:1:41</b></p>
<p><span id="more-188"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/kcfTr8NDorc" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
			<wfw:commentRss>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-04-cchs-story/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Diaphragm Pacing CH 01-Diaphragm Pacing</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-01-diaphragm-pacing</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-01-diaphragm-pacing#comments</comments>
		<pubDate>Sat, 14 Nov 2009 02:33:04 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-01-diaphragm-pacing</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/jiMhQGA8Yfk/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:4:18</b></p>
<p><span id="more-172"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/jiMhQGA8Yfk" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Home Mechanical Ventilation CH 06-Clinic Visits</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-06-clinic-visits</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-06-clinic-visits#comments</comments>
		<pubDate>Mon, 09 Nov 2009 11:26:07 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-06-clinic-visits</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/LI_mvBP29HA/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:4:1</b></p>
<p><span id="more-156"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/LI_mvBP29HA" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Home Mechanical Ventilation CH 02-HMV Considerations</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-02-hmv-considerations</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-02-hmv-considerations#comments</comments>
		<pubDate>Sun, 01 Nov 2009 20:48:16 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
		<category><![CDATA[hypercapnia]]></category>
		<category><![CDATA[hypoxia]]></category>
		<category><![CDATA[mutation]]></category>
		<category><![CDATA[NPV]]></category>
		<category><![CDATA[ondine]]></category>
		<category><![CDATA[ondine's curse]]></category>
		<category><![CDATA[pacing]]></category>
		<category><![CDATA[phox2b]]></category>
		<category><![CDATA[PPV]]></category>
		<category><![CDATA[pulminology]]></category>
		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-02-hmv-considerations</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/9sQSQTT7ldw/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:5:22</b></p>
<p><span id="more-140"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/9sQSQTT7ldw" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		</item>
		<item>
		<title>Home Mechanical Ventilation CH 04-The Home Stretch</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-04-the-home-stretch</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-04-the-home-stretch#comments</comments>
		<pubDate>Mon, 26 Oct 2009 06:58:06 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
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		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
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		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/home-mechanical-ventilation-ch-04-the-home-stretch</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/62QOIh6kJBQ/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:5:59</b></p>
<p><span id="more-124"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/62QOIh6kJBQ" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		</item>
		<item>
		<title>Diaphragm Pacing CH 05-Jim&#8217;s Story</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-05-jims-story</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-05-jims-story#comments</comments>
		<pubDate>Fri, 23 Oct 2009 07:06:07 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
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		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
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		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-05-jims-story</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/v-edubpX9nU/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:8:14</b></p>
<p><span id="more-116"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/v-edubpX9nU" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		</item>
		<item>
		<title>Diaphragm Pacing CH 02-Monique&#8217;s Story</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story#comments</comments>
		<pubDate>Tue, 20 Oct 2009 07:56:09 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
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		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
		<category><![CDATA[haddad syndrome]]></category>
		<category><![CDATA[hirsch sprung's]]></category>
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		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
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		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/aS5xCJn8xUg/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:4:15</b></p>
<p><span id="more-104"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/aS5xCJn8xUg" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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		</item>
		<item>
		<title>Diaphragm Pacing CH 02-Monique&#8217;s Story</title>
		<link>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story</link>
		<comments>http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story#comments</comments>
		<pubDate>Tue, 20 Oct 2009 07:56:09 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Central Sleep Apnea]]></category>
		<category><![CDATA[CCHS]]></category>
		<category><![CDATA[cchsnetwork.org]]></category>
		<category><![CDATA[children's hospital]]></category>
		<category><![CDATA[CHLA]]></category>
		<category><![CDATA[Diaphragm Pacing]]></category>
		<category><![CDATA[Dr Keens]]></category>
		<category><![CDATA[gene]]></category>
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		<category><![CDATA[rare genetic disorder]]></category>
		<category><![CDATA[Sheila Kun]]></category>
		<category><![CDATA[sleep apnea]]></category>
		<category><![CDATA[trach]]></category>
		<category><![CDATA[tracheotomy]]></category>

		<guid isPermaLink="false">http://sleepapneazone.org/blog/central-sleep-apnea/diaphragm-pacing-ch-02-moniques-story</guid>
		<description><![CDATA[Sheila Kun Nurse Case Manager Pediatric Pulminology skun@chla.usc.edu CCHS Congenital Central Hypoventilation Syndrome congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep. Persons who have CCHS get it at birth, or develop it due [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://i.ytimg.com/vi/aS5xCJn8xUg/2.jpg" align="left">Sheila Kun<br />
Nurse Case Manager Pediatric Pulminology<br />
skun@chla.usc.edu</p>
<p>CCHS<br />
Congenital Central Hypoventilation Syndrome<br />
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine&#8217;s curse classically suffer from respiratory arrest during sleep.</p>
<p>Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]</p>
<p>This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.</p>
<p>A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person&#8217;s ethnicity, as of this point, has been not been coincided a variable to the disease.</p>
<p>Duration : <b>0:4:15</b></p>
<p><span id="more-105"></span><br /><iframe title="YouTube video player" class="youtube-player" type="text/html" width="425" height="344" src="http://www.youtube.com/embed/aS5xCJn8xUg" frameborder="0" allowFullScreen="true"> </iframe></p>
]]></content:encoded>
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